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Bobbi replied to the topic Valuable Lessons from Rare, Chronic Diseases in the forum Mental Health, Self-Care, and Support 11 months, 2 weeks ago
You have to advocate for yourself! I am so grateful that they finally diagnosed me and I’m now on the right medication! Tell everyone you know that if a doctor tell you you have fibromyalgia because they can’t find what disease fits into their box, but your muscles are week and multiple doctors have said they think you have an auto immune diso…[Read more]
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Bobbi replied to the topic Working Career in the forum Working/Careers and Myasthenia Gravis 11 months, 2 weeks ago
The older I get the worse my MG symptom has gotten! It effects the muscles in my entire body. It’s not just double vision, but my eyes lock up and they sometimes just will not even open, my legs get very weak and I get off balance and almost fall or do fall, fall, I lost most of my strength in both of my hands, I haven’t chewed gum in over 30 ye…[Read more]
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Bobbi replied to the topic Working Career in the forum Working/Careers and Myasthenia Gravis 11 months, 2 weeks ago
The older I get the worse my MG symptom has gotten! It effects the muscles in my entire body. It’s not just double vision, but my eyes would lock up and they will sometimes just not even open, my legs were very week and I would fall or almost fall, I lost most of my strength in both of my hands, I haven’t chewed gum in over 30 years because of h…[Read more]
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Bobbi replied to the topic Cramping and Joint Pain From Mestinon in the forum Healthcare and Myasthenia Gravis 11 months, 3 weeks ago
Hi everyone,
Mon the subject of spasms/cramps that will wake you up jerk you out of bed at 2:00am, 3:00am, etc…. I’ve been having them for years way before I got diagnosed with MG. I’ve tried everything from magnesium, potassium, coconut water, things that’s guaranteed to work for cramps-you name and I’ve tried it and nothing worked. This was l…[Read more]
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Bobbi changed their profile picture 11 months, 3 weeks ago
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Bobbi became a registered member 1 year, 1 month ago
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Hello, Bobbi! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with…[Read more]
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