Profile

Name

David

Last Name

Pokornik

Nickname

disneydave

Short Bio

I have Seronegative MG since 2018. I was controlled with Plasmapheresis, Soliris and Azathioprine. Now I’m part of the Descartes-08 drug trial and only take still Azathoprine, my MG symptoms are almost completely gone. My ADL score has been a zero for several months now.

Year of birth

1958

Gender

Male

Location

Charlotte

Relationship

Patient

How did you hear about us?

Facebook

How long have you or the person that you are caring for had MG?

Diagnosed 2018, had since 2011.

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