Profile

Last Name

Pokornik
Nickname

disneydave
Short Bio

I have Seronegative MG since 2018. I was controlled with Plasmapheresis, Soliris and Azathioprine. Now I’m part of the Descartes-08 drug trial and only take still Azathoprine, my MG symptoms are almost completely gone. My ADL score has been a zero for several months now.
Age

1958
Gender

Male
Country

Charlotte
What best describes you?

Patient
How long have you or the person that you are caring for had MG?

Diagnosed 2018, had since 2011.

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