Brad Herndon

I have generalized MG with the primary symptoms being diplopia and ptosis, which are currently kept in check with alternating days of 20mg/17.5mg of Prednisone along with Mycophenolate.  Mestonin was a non-starter for me as it wasn’t that effective and produced the unpleasant side effects of stomach upset and intermittent eyelid spasms…very…[Read more]

Hi N Muruga,

That is absolutely not true.  If you have the resources, you need to connect with a Neurologist, preferably, an MG specialist, if possible.  There are multiple treatment approaches.   Some won’t work for everyone but many do.  It is a bit of trial and error, but so important to connect with good clinicians to help guide the jour…[Read more]

I know there is so much more being discussed on this thread, but I want to echo how, in my opinion, it is so important to find a neurologist with a specialty in the neuromuscular subgrouping of neurology.  It was a night and day difference between the first neurologist I went to who, honestly, didn’t seem to have a lot of experience with MG to…[Read more]

After being recently diagnosed with MG at 60 years old, and being paired with a specialist that was not a good fit, I think I have now found a good match with a Neurologist.  Win! Very engaged, patient, thorough, empathic…and energetic about addressing my concerns and symptoms. On first appointment, I came away knowing so much more than I did…[Read more]

Hi All,

I am 60 years old and very recently diagnosed with MG, and am currently taking Pyridostigmine Bromide 270mg per day  and prednisone 10mg per day.   I am also currently scheduled for my first appt. with a 2nd neurologist, as I quickly realized that the neurologist I was referred to has not really been a leader in this process.  Each tim…[Read more]