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Brad Herndon started the topic Ocular Hypertension with Prednisone treatment for MG in the forum Healthcare and Myasthenia Gravis 5 months, 1 week ago
Hello,
I was wondering if anyone else who may currently be taking Prednisone as part of their prescribed MG treatment has experienced an increase in ocular pressure?
Since my pressure jumped up substantially from my last annual eye visit, I was prescribed some eye drops (normally used for Glaucoma treatment) to help bring down the pressure in my…[Read more]
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Brad Herndon replied to the topic Steroid Alternatives in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 7 months, 1 week ago
I have generalized MG with the primary symptoms being diplopia and ptosis, which are currently kept in check with alternating days of 20mg/17.5mg of Prednisone along with Mycophenolate. Mestonin was a non-starter for me as it wasn’t that effective and produced the unpleasant side effects of stomach upset and intermittent eyelid spasms…very…[Read more]
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Brad Herndon replied to the topic Probiotics for MG in the forum Nutrition, Supplements, and Exercise 11 months, 2 weeks ago
Hi N Muruga,
That is absolutely not true. If you have the resources, you need to connect with a Neurologist, preferably, an MG specialist, if possible. There are multiple treatment approaches. Some won’t work for everyone but many do. It is a bit of trial and error, but so important to connect with good clinicians to help guide the jour…[Read more]
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Brad Herndon changed their profile picture 1 year, 1 month ago
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Brad Herndon replied to the topic How do I know if I'm with the right Neurologist/Neuro-Specialist? in the forum Healthcare and Myasthenia Gravis 1 year, 1 month ago
I know there is so much more being discussed on this thread, but I want to echo how, in my opinion, it is so important to find a neurologist with a specialty in the neuromuscular subgrouping of neurology. It was a night and day difference between the first neurologist I went to who, honestly, didn’t seem to have a lot of experience with MG to…[Read more]
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Brad Herndon replied to the topic Recent Wins in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 2 months ago
After being recently diagnosed with MG at 60 years old, and being paired with a specialist that was not a good fit, I think I have now found a good match with a Neurologist. Win! Very engaged, patient, thorough, empathic…and energetic about addressing my concerns and symptoms. On first appointment, I came away knowing so much more than I did…[Read more]
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Brad Herndon replied to the topic Very new to my diagnosis. A bit confused and would like anyone to weigh in. in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 year, 2 months ago
Hi All,
I am 60 years old and very recently diagnosed with MG, and am currently taking Pyridostigmine Bromide 270mg per day and prednisone 10mg per day. I am also currently scheduled for my first appt. with a 2nd neurologist, as I quickly realized that the neurologist I was referred to has not really been a leader in this process. Each tim…[Read more]
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Brad Herndon became a registered member 1 year, 2 months ago
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Hello, Brad! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support. I hope we can aid in bringing you…[Read more]
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