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Bill Johnson replied to the topic Anyone with experience with Rituximab infusions? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 5 months, 1 week ago
I was diagnosed with Oculobulbar Myasthenia Gravis 25 years ago after experiencing an acute myasthenic crisis. I was hospitalized for several weeks while I underwent several rounds of plasmapheresis, IVIg, high-dose corticosteroids, and ultimately a thymectomy. I recovered relatively quickly, and for nearly two decades I was effectively t…[Read more]
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Bill Johnson's profile was updated 6 months, 1 week ago
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Bill Johnson changed their profile picture 6 months, 1 week ago
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Bill Johnson replied to the topic Evusheld in the forum Coronavirus (COVID-19) and Myasthenia Gravis 8 months, 2 weeks ago
I am receiving rituximab infusions every 6 months, so I have no B-cells and therefore, create no antibodies. As such, my immunologist recommends Evusheld. I received my first series (300 mg. tixagevimab & 300 mg. cilavimab) of IM shots in mid-March 2022. I don’t recall having any appreciable side effects. Unfortunately, I got COVID in mid-…[Read more]
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Bill Johnson replied to the topic Evusheld Antibody Treatment in the forum Coronavirus (COVID-19) and Myasthenia Gravis 1 year, 2 months ago
I have anti-MuSK MG, treated with rituximab 1,000 mg. infusion every 6 months. I got the Moderna vaccines (two doses) in Feb. 2021, received my rituximab infusion in May, and then in June 2021, when tested, I had no antibodies to SARS-CoV-2. My immunologist felt that boosters were a waste of time and vaccine because of the effects of the…[Read more]
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Bill Johnson replied to the topic COVID-19 Vaccine Booster Shot and Myasthenia Gravis in the forum Coronavirus (COVID-19) and Myasthenia Gravis 1 year, 6 months ago
Received the two (2) Moderna shots in early 2021, then received my usual rituximab infusion in May (get Rituxan every 6 months). Unfortunately, the rituximab inhibited the creation of any antibodies (confirmed by serum antibody test). Unfortunately, I contracted COVID-19 in the fall, but was fortunate enough to have started monoclonal antibody t…[Read more]
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Bill Johnson became a registered member 1 year, 6 months ago
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Hello, Bill! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
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