Short Bio |
Iโve been diagnosed as seronegative since April/23, however the lab would only test me for 1 out of the 3 antibodies. My symptoms started about 3 years ago with ocular double vision. At present Iโve had 2 rounds of IVIG, which have helped enormously with weakness and fatigue. Iโm on 5 mg of prednisone and 30 mg of mestinon 2x a day. Breathing is also an issue. We have no MG specialists where I live so Iโm looking for more information always, and a zoom group might be very helpful.
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How long have you or the person that you are caring for had MG? |
9 months
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