Angel
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Angel replied to the discussion AChR Results, Thymona in the forum Healthcare and Treatments 7 weeks ago
Hello david. I was diagnosed MG back in march 2023. My AchR-ab score was 28 before a thymectomy (no thymoma found but enlarged one considering my age of 59 years old). My thymectomy was 5 months after my MG diagnostic. My first infusion was when I faced a bulbar crisis (before thymectomy) and I was treated with IVIG for 5 days every 4 months…
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Angel replied to the discussion Medicare and IVIG in the forum Diet, Exercise, and Supplements 2 months ago
Hello robert and everyone in this group. I was diagnosed MG back in march 2023. My AchR-ab score was 28 before a thymectomy. Then after a bulbar crisis, I was treated with IVIG for 5 days every 3 months or so. I have being improved and my last infusion was last week after 5 months. My AchR-ab score is going down … right now it is 16 nmol/l (43%…
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Angel replied to the discussion Thymectomy in the forum Healthcare and Treatments a year ago
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Angel replied to the discussion New approved MG treatment for gMG – Vyvgart Hytrulo in the forum Healthcare and Treatments a year ago
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Angel replied to the discussion Magnesium and Myasthenia Gravis in the forum Healthcare and Treatments a year ago
Magnesium and Myasthenia Gravis
Good morning.
Have you aware or hear about this? Please your comments are appreciated
FDA Approves subcutaneous Vyvgart for MG
https://www.formularywatch.com/view/fda-approves-subcutaneous-vyvgart-for-myasthenia-gravis
Thank you
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Hey Angel! I started a discussion about the new treatment here
– Jodi, Team Member
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Angel replied to the discussion Supplements and Vitamins in the forum Diet, Exercise, and Supplements a year ago
Hello Irene… how are you? I was reading your response and I found out we use almost the same supplements dosis. Have you made any changes? I am wondering about the vitamine D3 in a high dosis. I found out the following link (obviously this is not a promotion neither a medical suggestion)… … Read more
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Angel and Yasamin are now connected a year ago
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Angel became a registered member a year ago
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Hey, Angel! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Sending you much compassion… Read more
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