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Paula Simonette replied to the topic Actual Results using Vyvgart in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 1 week, 6 days ago
Hi everyone, I am on my fifth day after my first treatment of Vyvgart. I am continuing to feel a little better each day. I continue to have pain in just right eye with a pulling sensation. This is a symptom that has been ongoing since I was diagnosed in June 2020. I have been to my ophthalmologist and they keep ruling out other things. Just…[Read more]
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Paula Simonette changed their profile picture 2 weeks, 2 days ago
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Paula Simonette replied to the topic Actual Results using Vyvgart in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 2 weeks, 2 days ago
Hi everyone, I am happy to say that I feel better today. Second day after my 1st Vyvgart fusion. No side effects. I know it’s early in the process, but I am just so happy to be feeling better.
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Paula Simonette replied to the topic Actual Results using Vyvgart in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 2 weeks, 3 days ago
Hi Teresa, my infusion lasted one hour and then they observed me for another hour. Is That normal? I have been hydrating, living in Arizona has taught me the importance of that. I have an appointment with my neurologist tomorrow. I will find out then about weaning off prednisone. I have been on 20 mg a day since beginning of January. I will let…[Read more]
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Paula Simonette replied to the topic Actual Results using Vyvgart in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 2 weeks, 3 days ago
Hi everyone, this is my first post. I received my 1st Vivgart infusion yesterday. I am antibody positive. I felt very weak & dizzy all day. Could not sleep. Feel somewhat better this morning. Does anyone know what it’s like to ween off the Prednisone? I can’t wait.
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Paula Simonette became a registered member 2 weeks, 3 days ago
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Hello, Paula! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
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