Profile

Name

Mary Jane Tynan

Nickname

mary-jane-tynan

Short Bio

2007 diagnosed. Symptoms in eyelid droop, trouble speaking and chewing and then generalized. However undiagnosed symptoms and a thymectomy in 2004 due to discovery of thymoma after an accident.  First IVIG infusions in 2010. I was in remission for about 3 yrs. but symptoms returned and I had other IVIG infusions. Febr 28, 2021 had 1st covid vaccine,  MG exacerbated was hospitalized March 1-17,2021. 12 days in ICU.  I was unable to swallow, double vision, and when they put in feeding tube I started to bleed and they incubated me for 9 days.  I received 7 plasma exchange while in ICU and 3 IVIG before going into ICU. I was hospitalized twice after that in June and September due to MG symptoms.  UTIs have been an issue.  Still having difficulty swallowing. Now on 25 mg ED 1 1/2 mestinon 4 times a day.  So this is my life right now and I am trying to discern my ability to continue in ministry activities.

Year of birth

1949

Gender

Female

Location

Omaha, NE

Relationship

Patient

How did you hear about us?

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How long have you or the person that you are caring for had MG?

Since 2004

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