Michael

Hello Theresa,  That’s fantastic news, glad the therapy seems to be working for you.  Can you clarify “i have to remember that reduction will cause MG like symptoms.”?  Are you saying you become symptomatic because of the taper, but it’s not the MG flaring? I’ve been in IG for a couple years.  I’m down to 7mg a day, but am afraid to go fur…[Read more]

Director of operations/business systems integrations/data management, health insurance industry.  I had 12o employees, 7 direct reports.  I climbed the ladder in management after my MG diagnosis.  The MG didn’t stop me, but the side effects from the medications put a damper on things.

One of my rubs with the corporate world is all will say th…[Read more]

I had a thymectomy 26 years ago.  It didn’t put me in remission, but it may have made the MG more manageable.  That said, I think that’s a bazaar clinical trial.  They would have to make an incision in your body to make you think you had a thymectomy…right?  No way would I do that.  I’m with you and absolutely 100% would want the thymectomy and…[Read more]

Here’s the saving grace for us seronegative folks, Imuran, Cellcept, Retuximab, IVIG and many other treatments are not FDA approved for MG and most are covered for use with most insurance companies.