Short Bio |
I was diagnosed in 1991 and it was a really terrible ordeal. I was misdiagnosed initially and if it wasnt for a second opinion initiated by a friend I only had 4 days to live. I had my thymus removed and then trying a multitude if drugs. It has been very difficult to find the balance. I have continued my plasmapherisis. Now every 4 weeks. On prendisone 7-1/2/day and Rituximab once yearly. Unfortunately being on Immuran over many years has made my skin susceptible to melanomas and skin cancers- which I have removed regularly and in February last severed my quadricep due to long term steroids but unfortunately these are choices that had to be made to stay well. I still work 4 days a week and am now 63 years old.
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