Short Bio |
I am the mother of an 18 year old daughter who was diagnosed with Myasthenia Gravis Just before her 17th birthday. She had a thymectomy six months after her diagnosis, but we have not seen any signs of improvement yet. She is preparing to go to college, a smart, active, strong willed, beautiful girl (I’m biased). I worry about her physical, emotional, and mental health as we learn about her MG, struggle to explain it to medical providers, and prepare for her to move to a new area and start all over with new care givers. It will be encouraging to hear from others who have been through this and learn about their journies.
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How long have you or the person that you are caring for had MG? |
One year
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