Profile

Name

Julia

Nickname

dnjmogensengmail-com

Short Bio

I am the mother of an 18 year old daughter who was diagnosed with Myasthenia Gravis Just before her 17th birthday. She had a thymectomy six months after her diagnosis, but we have not seen any signs of improvement yet. She is preparing to go to college, a smart, active, strong willed, beautiful girl (I’m biased). I worry about her physical, emotional, and mental health as we learn about her MG, struggle to explain it to medical providers, and prepare for her to move to a new area and start all over with new care givers. It will be encouraging to hear from others who have been through this and learn about their journies.

Year of birth

1966

Gender

Female

Location

Iowa

Relationship

Family

How did you hear about us?

MG Website

How long have you or the person that you are caring for had MG?

One year

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