Profile

Name

Caroline

Nickname

caroline

Short Bio

My 48 y/o sister was diagnosed with MG in August 2021 and has progressively declined; more rapidly in the last two weeks. She is very sensitive to medication and with slow incremental increases of doses (prednisone and mesti…she hasn’t improved. She received (4) IVIG infusions over two days at the beginning of December 2021. 16 Dec: Sent to ER on order from neurologist. CT Scan is normal. X-RAYs show no abnormalities. MDs state they will try 1 more IVIG infusion. If she isn’t responsive, they are planning a Plasma Exchange. My thirst for any scrap of information is incredible. I feel helpless.
Has anyone experienced such a rapid decline with MG?

Year of birth

1972

Gender

Female

Location

Winnipeg, MB, Canada

Relationship

Caregiver

How did you hear about us?

Other

How long have you or the person that you are caring for had MG?

4 months

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