anne-t-bremser
Profile
Name | Anne T Bremser |
Nickname | anne-t-bremser |
Short Bio | I had symptoms for many years before I was diagnosed with MG in 2005. It wasn’t until I started having double vision that doctors finally realized it wasn’t all in my head. I have severe generalized MG, with difficulty walking, swallowing, and breathing. I was in and out of the hospital many times until they added plasmapheresis to my twice a month IVIG routine. I’m on mestinon 3 x a day, but can’t take immune suppressants because I also have very low immunoglobulin levels, so am immune suppressed. I also have 6 other autoimmune diseases. Even with the above mentioned treatments, I am having an exacerbation, and will spend the next 9 or 10 days in the hospital getting plasmapheresis 2 days on, 1 day off. I’m hoping it will get me walking again and help with my breathing. Right now I’m on oxygen. I also have trouble keeping my eyes open. My lids want to droop, especially on the left side. I like to listen to ebooks when I am like this. Sometimes it feels too hard to keep on keeping on, but my wonderful family and friends keep me going. Today a bunch of friends wheeled me to the movies, and we had a great time. That kind of thing keeps me going. |
Year of birth | 1955 |
Gender | female |
Location | Apple Valley CA |
Relationship | Patient |
How did you hear about us? | MG Website |
How long have you or the person that you are caring for had MG? | At least 30 years |
Privacy Policy and Terms of Use | I agree |