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Weird and unwanted vocalizations and waking up to swallow
Hi
i was diagnosed a few months ago when I was in the hospital going through crisis.
Prior to that, I was experiencing symptoms that stumped healthcare practitioners, including involuntary noises like little grunts or those similar to someone with Tourette Syndrome and not being able to exhale when sleeping
I use Mestinon (90 mg x4x/day), prednisone (25 mg) and Divalproex. I also go into hospital 2 days a month/ 4 hrs a day for IVIG. I still have these vocalizations, more so when I’m tired. I definitely am still waking up every few hours, even if I sleep on an incline.
I also only sleep in 4 hour intervals because I have difficulty swallowing any secretions that have gathered in my throat while I’m sleeping so I wake up not being able to exhale so I get up and clear my lungs (or whateEver) by drinking a lot of water.
My neurologist says neither of these things are MG issues. But aren’t they? My primary dr says not to find a new neurologist but I’m not entirely sure how to advocate for myself.
Thoughts please?
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