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Peripheral Neuropathy and MG?
Ive recently had this since July, just like it says on the tin, Brain Fog, cannot concentrate. Got Covid overseas in July, plus losing my wife due to heart failure, which has brought on severe stress and now Peripheral Neuropathy. Very fatigued, tingling in feet and hands and difficulty with sleeping so take Zolpidem which actually interferes with good sleep, particularly deep sleep and when I get up in the morning, staggering about and very weak with muscle loss, bad headaches and now have no idea how much this relates to MG. Certainly noticed though increased drooping of one eyelid. Oh, Boy!. Sorry this wasn’t meant to be a rant and actually TMI but actually wanted to know how many of you have MG and then started to have neuropathy issues and is this related to MG somehow? My neurologist says no, but I’m not so sure. But she is a neurologist, or who else do you ask for help? Trying out acupuncture. Albeit not a great holistic believer, but willing to give this a go for a while. Plus trying a devise recced by Dentist that gets you to stick your tongue out so aid sleeping as always using my BiPAP machine which I’m having issues with.
A right mess at present. Will also start a new thread here, as sometimes tends to get lost, so sorry for the double post as posted elsewhere re brain fog.
Onwards.
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4 Replies
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I was diagnosed with neuropathy a few months after being diagnosed with MG. I personally think the MG triggered the neuropathy that was probably going to happen anyway sometime. It just happened sooner. I’m not a medical professional, but it seemed too coincidental to be completely unrelated.
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I’ve had gMG for around 5 years now. I have also developed peripheral neuropathy in the feet and lower legs. As the statistic nerds will tell us … Association is not necessarily causation… but it makes you think. The neuropathy has been confirmed by a EMG. Questions arise.. is it the MG or possibly the treatment? Hopefully, there will be an answer one day.
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Yes, I also am wondering about this. And yet on this board I have mentioned before that particularly the Mycophenolate could be an issue here, or the mestinon, albeit I am only taking 60mg a day. The majority here have come back and said, “Listen to what your Neurologists says?”
And yet, when I went away for three weeks in June on vacation, ate and drank, didn’t take the pills, found myself getting better each day. Sleeping though or getting enough non-interrupted deep sleep is at present though causing me most issues. Plus, learning to control STRESS and not be impulsive. And yes, we mentioned this, Brain Fog, going and placing an item for the microwave in the Fridge!!!!! Then walking around in circles. 😱
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I’m so sorry for all that you’ve been facing, especially for the loss of your wife. Grief, stress, and recovery from illness can deeply affect how our bodies respond, and it’s understandable that everything feels compounded right now.
While we can’t offer medical advice, you might find some shared experiences helpful.
Mention of peripheral neuropathy: https://myastheniagravisnews.com/forums/forums/topic/agent-orange-exposure-and-mg/page/2/#post-22364
The forums and columns are safe spaces to connect with others who understand the ups and downs of MG, especially when life feels overwhelming. I hope some of what you find offers comfort and reassurance as you continue sorting through what’s going on. -Jodi, Patient Advocate
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