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DTSTART;TZID=America/Chicago:20260412T133000
DTEND;TZID=America/Chicago:20260414T143000
DTSTAMP:20260403T184127
CREATED:20260303T194615Z
LAST-MODIFIED:20260303T194615Z
UID:10000010-1776000600-1776177000@myastheniagravisnews.com
SUMMARY:2026 MGFA National Patient Conference
DESCRIPTION:MGFA’s National Patient Conference is one of the largest gatherings of the myasthenia gravis community in the world. At the conference\, you can: \n\nLearn about managing life with MG\nFind strength in connection with others\nHear more about next generation of treatments moving us closer to a world without MG.\n\nYou will not want to miss this powerful and impactful gathering. Thanks to the generous support of our sponsors\, there is no registration fee for patients and caregivers. In-person registration closes March 15; virtual registration will remain open.
URL:https://myastheniagravisnews.com/event/2026-mgfa-national-patient-conference/
LOCATION:Margaritaville Hollywood Beach Resort\, 1111 N. Ocean Drive\, Hollywood\, FL\, 33019\, United States
CATEGORIES:MGFA
ATTACH;FMTTYPE=image/png:https://myastheniagravisnews.com/wp-content/uploads/2026/03/MGFA-Conference-Logo-.png
ORGANIZER;CN="Myasthenia Gravis Foundation of America":MAILTO:mantonellis@myasthenia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250513
DTEND;VALUE=DATE:20250516
DTSTAMP:20260403T184127
CREATED:20241126T203958Z
LAST-MODIFIED:20241218T174906Z
UID:10000006-1747094400-1747353599@myastheniagravisnews.com
SUMMARY:MGFA International Conference
DESCRIPTION:Hosted by the MGFA\, this influential gathering of neuromuscular researchers and medical professionals is a prominent opportunity to present your work and hear from accomplished peers from around the world. We hope that you will be able to join us for this premier scientific gathering of global MG leaders.
URL:https://myastheniagravisnews.com/event/mgfa-international-conference/
LOCATION:Postillion Hotel and Convention Center\, Waldorpstraat 15\, 2521 CA Den Haag\, Netherlands\, The Hague\, The Netherlands\, Netherlands
CATEGORIES:MGFA
ATTACH;FMTTYPE=image/jpeg:https://myastheniagravisnews.com/wp-content/uploads/2024/11/MGFA-International-Conference-Image-e1734544098247.jpg
ORGANIZER;CN="Myasthenia Gravis Foundation of America":MAILTO:mantonellis@myasthenia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250412T090000
DTEND;TZID=America/Chicago:20251011T130000
DTSTAMP:20260403T184127
CREATED:20250318T190134Z
LAST-MODIFIED:20250320T164249Z
UID:10000009-1744448400-1760187600@myastheniagravisnews.com
SUMMARY:Community Health Fairs
DESCRIPTION:Curious about the latest resources\, medical advances\, and wellness options available to people living with myasthenia gravis? Join MGFA at a Community Health Fair in a city near you! See links below for details for each city: \n\nNashville\n\nLocation: Sheraton Grand Nashville Downtown\nAddress: 623 Union St. Nashville\, TN 37219\nDate: April 12th\, 2025\nTime: 9:00 AM to 1:00 PM\nRegistration Link\nVolunteer Lead: Contact Tasha Duncan if you’re interested!\n\n\n\n  \n\nNew York\n\nLocation: New York Marriott at the Brooklyn Bridge\nAddress: 333 Adams St. Brooklyn\, NY 11201\nDate: May 3\, 2025\nTime: 9:00 AM – 1:00 PM\nRegistration Link\nVolunteer Lead: Priscilla Forrester\n\n\n\n  \n\nTampa Bay Area\n\nLocation: Vinoy\nAddress: 501 5th Ave. NE St. Petersburg\, FL 33701\nDate: May 3\, 2025\nTime: 9:00 AM – 1:00 PM\nRegistration Link\nVolunteer Lead: Kathi Timothy\n\n\n\n  \n\nOrange County/Los Angeles\n\nLocation: Irvine Marriott\nAddress: 18000 Von Karman Ave. Irvine\, CA 92612\nDate: May 31\, 2025\nTime: 9:00 AM to 1:00 PM\nRegistration Link\nVolunteer Lead: Jessica Milanes\n\n\n\n  \n\nDenver\n\nLocation: Sheraton Denver Tech Center\nAddress: 7007 Clinton St. Greenwood Village\, CO 80112\nDate: June 7\, 2025\nTime: 9:00 AM to 1:00 PM\nRegistration Link\nVolunteer Lead: Dave Gestner\n\n\n\n  \n\nToronto Metro Area/Waterloo/Southwest Ontario\n\nLocation: Crowne Plaza Ontario Kitchner-Waterloo\nAddress: 105 Kin St. East Kitchener ON\, N2G 2K8\, Canada\nDate: August 23\, 2025\nTime: 9:00 AM – 1:00 PM\nRegistration Link\nVolunteer Lead: Contact Tasha Duncan if you’re interested!\n\n\n\n  \n\nBoston\n\nLocation: Boston Marriott Newton\nAddress: 2345 Commonwealth Ave. Newton\, MA 02459\nDate: September 6\, 2025\nTime: 9:00 AM – 1:00 PM\nRegistration Link\nVolunteer Lead: Siobhain Carolan\n\n\n\n  \n\nSeattle/Bellevue\n\nLocation: W Bellevue\nAddress: 10455 NE 5th Place Bellevue\, WA 98004\nDate: September 13\, 2025\nTime: 9:00 AM – 1:00 PM\nRegistration Link\nVolunteer Lead: Joe Frisbie\n\n\n\n  \n\nChicago\n\nLocation: Chicago Marriott Southwest at Burr Ridge\nAddress: 1200 Burr Ridge Pkwy Burr Ridge\, IL 60527\nDate: September 20\, 2025\nTime: 9:00 AM – 1:00 PM\nRegistration Link\nVolunteer Lead: Contact Tasha Duncan if you’re interested!\n\n\n\n  \n\nHouston (Hosted in partnership with Houston Methodist)\n\nLocation: Houston Methodist Research Institute\nAddress: 6670 Bertner Ave. Houston\, TX 77030\nDate: October 11\, 2025\nTime: 9:00 AM – 1:00 PM\nRegistration Link\nVolunteer Lead: Meena Outlaw\n\n\n\n  \nThis free event can help you and your loved ones navigate MG. Hear from and talk with medical professionals\, access educational and wellness resources\, and meet others in the MG Community. Connect with each other\, share stories and guidance\, and learn more about managing this disease. \nEach event includes educational presentations by MG experts\, time to network and get to know others in the MG Community\, and a chance to visit exhibitors. \nLearn from experts about treatment options and strategies for managing MG\, ask support group leaders your questions\, connect with local businesses that specialize in patient and caregiver needs\, and connect with others who know what you’re going through.
URL:https://myastheniagravisnews.com/event/community-health-fairs/
CATEGORIES:MGFA
ORGANIZER;CN="Myasthenia Gravis Foundation of America":MAILTO:mantonellis@myasthenia.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250405T100000
DTEND;TZID=America/Chicago:20251101T130000
DTSTAMP:20260403T184127
CREATED:20250318T190058Z
LAST-MODIFIED:20250320T165035Z
UID:10000008-1743847200-1762002000@myastheniagravisnews.com
SUMMARY:MG Walks
DESCRIPTION:MG Walks raise critical funds for myasthenia gravis research\, education\, and resources for those affected by MG. But this isn’t your average fundraising walk! Join the MG Community for a morning of fun and fundraising that is accessible to all. Expect music\, games\, activities\, snacks\, and time to connect with friends new and old. MG may be a rare disease\, but you don’t have to go it alone! Whether you choose to walk with us or make a gift\, your contribution brings MGFA one step closer to a world without MG. \nHow do I register for the MG Walk? \nRegistration is required to participate in the MG Walk — See below to check if there is an MG Walk located in a city near you! \nRegister as an individual\, start a new team\, or join an existing team. Next\, create a fundraising page and share why you’re walking for A World Without MG. Then invite your network to support you! \nRegistration is $25 for adults and free for youth. All registered attendees receive an MG Walk t-shirt. If you have any questions or issues\, reach out to mgfa@myasthenia.org. \n\nHouston: 4/5/25\, 10 AM – 1 PM\n\nApril 5th\, 2025\n10 AM – 1PM\nCullen Park\, Houston\, TX\nAdult Registration Fee: $25\nRegistration Page\n\n\nBoston\n\nMay 31st\, 2025\n 10 AM – 1PM\nChristian Herter Park Boston\, MA \nAdult Registration fee: $25\nRegistration Page\n\n\nNew York\n\nSeptember 13th\, 2025\n10 AM – 1 PM\nRoy Wilkins Park\, Jamaica\, Queens\, NYC\nAdult Registration Fee: $25\nRegistration Page\n\n\nSouthern California\n\nOctober 4th\, 2025\n10 AM – 1 PM\nMiles Square Park\, Fountain Valley\, CA\nAdult Registration Fee: $25\nRegistration Page\n\n\nWashington D.C. Area\n\nNovember 1st\, 2025\n10 AM – 1 PM\nBen Brenman Park\, Alexandria\, VA\nAdult Registration Fee: $25\nRegistration Page\n\n\n\nDo I have to fundraise? \nFundraising is an important way you can take action to support critical myasthenia gravis research\, education\, and awareness. MGFA will provide a fundraising toolkit and share tips along the way to help you succeed. Fundraisers are also eligible for prizes! That said\, you do not have to fundraise to take part in the MG Walk. \nDo I have to walk? \nNo\, the MG Walk is an all-abilities event that focuses on fun\, family\, and fundraising. While a portion of the event will be a traditional “walk” around a wheelchair-accessible section of the park\, you don’t need to walk or wheel to have a great time. No matter your mobility or ability\, there’s a way to participate\, have fun\, and raise awareness of this devastating rare disease. \nHow do I donate? \nTo support an MG Walk\, you can make a gift on the walk’s registration page. Find a link to each MG Walk page below. If you or your business would like to sponsor this event\, please reach out via this form or by emailing Tasha Duncan. \nHow do I volunteer? \nVolunteers make MGFA events possible! If you would like to help\, we will find a role that meets your abilities. Tasks MGFA often needs assistance with include set up / take down\, greeting attendees\, check-in table\, and snack table. Let them know you are interested!
URL:https://myastheniagravisnews.com/event/mg-walks/
CATEGORIES:MGFA
ATTACH;FMTTYPE=image/jpeg:https://myastheniagravisnews.com/wp-content/uploads/2025/03/MG-Walk-e1742489052600.jpg
ORGANIZER;CN="Myasthenia Gravis Foundation of America":MAILTO:mantonellis@myasthenia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250330
DTEND;VALUE=DATE:20250402
DTSTAMP:20260403T184127
CREATED:20241126T203938Z
LAST-MODIFIED:20241218T175251Z
UID:10000005-1743292800-1743551999@myastheniagravisnews.com
SUMMARY:MGFA National Patient Conference
DESCRIPTION:This annual event brings together all members of the myasthenia gravis community\, including individuals living with MG\, care partners\, family members\, and leading MG experts. The 2025 conference will feature a wide range of sessions on MG research\, treatment updates\, and discussions designed to help you and your family better manage your MG journey. It’s a wonderful opportunity to learn about the latest in MG treatments and discoveries while connecting with others in the community. This year\, we are excited to introduce several new elements\, including interactive workshops\, expanded Q&A sessions with top MG researchers and clinicians\, and dedicated networking opportunities for attendees to connect with one another and share their experiences. There is no cost for patients and care partners/family members to attend\, thanks to generous support from our partners. However\, we kindly ask that you only register if you plan to attend in person\, to ensure the most effective use of our resources.
URL:https://myastheniagravisnews.com/event/mgfa-national-patient-conference/
LOCATION:Arizona Grand Resort & Spa\, 8000 S Arizona Grand Parkway\, Phoenix\, 85044\, United States
CATEGORIES:MGFA
ATTACH;FMTTYPE=image/jpeg:https://myastheniagravisnews.com/wp-content/uploads/2024/11/MGFA-Patient-Conference-Image-e1734544219574.jpg
ORGANIZER;CN="Myasthenia Gravis Foundation of America":MAILTO:mantonellis@myasthenia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250316T070000
DTEND;TZID=America/Chicago:20250319T120000
DTSTAMP:20260403T184127
CREATED:20250226T202902Z
LAST-MODIFIED:20250226T202902Z
UID:10000007-1742108400-1742385600@myastheniagravisnews.com
SUMMARY:MDA: Clinical & Scientific Conference
DESCRIPTION:Join us in shaping the future of neuromuscular disease research and care at the MDA’s 2025 Clinical and Scientific Conference. The record number of participants from around the globe at our 2024 conference underscores the vital role our gathering plays in advancing the field of neuromuscular medicine and bringing ever more powerful therapies to people living with neuromuscular disease. No other conference in our space commands the attention and engagement of clinicians\, researchers\, allied health professionals\, industry\, and patient advocates quite like ours. \nOur collective efforts over many years have brought us into a prolific era for drug development. This Era of Treatments has been marked by groundbreaking discoveries and innovative therapies that bring new hope to our community. These include major advances in genetic therapies\, treatments for ultrarare conditions and parsing emerging data points that help us visualize new paths forward for ending neuromuscular disease. The value of being part of this conference is unparalleled. At the MDA Clinical and Scientific Conference\, you and your organization gain visibility and alignment with cutting-edge research and compassionate care\, and benefit from discussions about the latest scientific advancements\, collaborative opportunities\, and opportunities to shape the future of neuromuscular medicine. The momentum we are building is extraordinary. The synergy of our diverse expertise and shared dedication propels us towards unprecedented achievements and meaningful change for children and adults pursuing longer\, stronger\, more independent lives. Join us and be part of a global movement that continues to push the boundaries of what is possible. \nIf you are a patient or caregiver interested in attending the in-person conference or an MDA volunteer interested in attending virtually\, please complete this form before registering: https://web.cvent.com/event/a0e62898-47b9-4b88-88b8-aca631f6a834/register?RefId=2025+Attendee+Registration+Email&rp=84e6d5ae-6b69-4e5c-b84d-614504db238c
URL:https://myastheniagravisnews.com/event/mda-clinical-scientific-conference/
LOCATION:Hilton Anatole\, 2201 N Stemmons Freeway\, Dallas\, TX\, 75207\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://myastheniagravisnews.com/wp-content/uploads/2025/02/2025-Conference-Lockup-final.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241109T100000
DTEND;TZID=America/Chicago:20241109T153000
DTSTAMP:20260403T184127
CREATED:20241031T161305Z
LAST-MODIFIED:20241031T161305Z
UID:10000003-1731146400-1731166200@myastheniagravisnews.com
SUMMARY:MDA Engage Symposium: Irvine\, CA
DESCRIPTION:This Engage Symposium will offer sessions on myasthenia gravis (MG)\, Pompe disease\, spinal muscular atrophy (SMA)\, and myositis\, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as navigating insurance\, mental health\, and exercise. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Tahseen Mozaffar\, neurologist at UC Irvine chairing this Engage Symposium.
URL:https://myastheniagravisnews.com/event/mda-engage-symposium-irvine-ca/
LOCATION:The Beckman Center\, 100 Academy Way\, Irvine\, CA\, 92617\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://myastheniagravisnews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Irvine.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241109T100000
DTEND;TZID=America/Chicago:20241109T153000
DTSTAMP:20260403T184127
CREATED:20241031T161242Z
LAST-MODIFIED:20241031T161242Z
UID:10000004-1731146400-1731166200@myastheniagravisnews.com
SUMMARY:MDA Engage Symposium: Dallas\, TX
DESCRIPTION:This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS)\, Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, myotonic dystrophy\, ultra-rare neuromuscular diseases\, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as nutrition\, exercise\, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community.
URL:https://myastheniagravisnews.com/event/mda-engage-symposium-dallas-tx/
LOCATION:Renaissance Dallas Hotel\, 2222 N Stemmons Fwy\, Dallas\, TX\, 75207\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://myastheniagravisnews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Dallas.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T100000
DTEND;TZID=America/Chicago:20241102T153000
DTSTAMP:20260403T184127
CREATED:20241031T160646Z
LAST-MODIFIED:20241101T153537Z
UID:10000002-1730541600-1730561400@myastheniagravisnews.com
SUMMARY:MDA Engage Symposium: Stanford\, CA
DESCRIPTION:This Engage Symposium will provide updates on all neuromuscular diseases including Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, amyotrophic lateral sclerosis (ALS)\, spinal muscular atrophy (SMA)\, myasthenia gravis (MG)\, limb-girdle muscular dystrophy (LGMD)\, myotonic dystrophy (DM)\, Charcot-Marie-Tooth disease (CMT)\, Pompe disease\, Lambert-Eaton myasthenic syndrome (LEMS)\, Friedreich Ataxia (FA)\, facioscapulohumeral muscular dystrophy (FSHD)\, and several others. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and companies supporting the neuromuscular community. \nMDA is pleased to have Dr. John W. Day\, neurologist at Stanford University chairing this Engage Symposium.
URL:https://myastheniagravisnews.com/event/mda-engage-symposium-stanford-ca/
LOCATION:Li Ka Shing Learning and Knowledge Center- Paul & Mildred Berg Hall\, 291 Campus Drive\, Stanford\, CA\, 94305\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://myastheniagravisnews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Stanford.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241005T100000
DTEND;TZID=America/Chicago:20241005T153000
DTSTAMP:20260403T184127
CREATED:20241025T211748Z
LAST-MODIFIED:20241025T211748Z
UID:10000001-1728122400-1728142200@myastheniagravisnews.com
SUMMARY:MDA Engage Symposium: Atlanta\, GA
DESCRIPTION:This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS)\, spinal muscular atrophy (SMA)\, Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, research and clinical trial updates for all diagnoses\, as well as sessions on daily living such as nutrition\, exercise\, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Jun Ho Kim from Children’s Hospital of Atlanta and Dr. Jonathan Glass from Emory University co-chairing this Engage Symposium.
URL:https://myastheniagravisnews.com/event/mda-engage-symposium-atlanta-ga/
LOCATION:Emory Conference Center Hotel\, 1615 Clifton Road\, Atlanta\, GA\, 30329\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://myastheniagravisnews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Atlanta.jpg
END:VEVENT
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